Terms of Use

Welcome to The Charlie Elenore Foundation's website. Our mission is to help rare disease patients connect with resources, clinical trials, and support for travel and treatment. The information and content published on this website is for educational and informational purposes only. It should not be used as a substitute for professional medical advice, diagnosis, or treatment. Please consult with your physician or healthcare provider for any medical or health-related concerns. We are committed to transparency and take the privacy of our visitors seriously. Any personal information collected on this website will be used solely for the purposes of providing the services and resources that we offer. By using this website, you agree to our Terms of Use and Privacy Policy. If you have any questions or concerns, please contact us.